Wednesday, August 31, 2016

Mama Current Crew

Want to support my birdie and buy some cute shirts?

Cute hats?

Cute EVERYTHING?

Here you go.....

CURRENT CREW


As most of you know, Kris started this little venture a couple years ago.  What started out as an Instagram Account turned into a website.  A website turned into a hobby.  A hobby turned into a healing zone. A healing zone turning into a "living".  Funny looking back at his passion for the ocean, I never really understood the fishing hobby.  Maybe I have no patience.  Maybe because I get so sea sick. But I do know my boy has always loved to get "fishy" and LOVES to be out there on that water.  Always has, and most likely always will.  In fact, in the beginning days of true healing, and letting the ropes out more and more...I'd fret at him venturing out there.  When finally a light went on in my head.  Why fret over something that is so  refreshing to his soul.   A giant pool of saltwater.  A place he'd turn to for peace.  For solace. 

Now, a year later it's his source of income.  His source of lifestyle.  His source of lively hood. 

And if you ask me, it's a beautiful thing. 

So do him a sweet favor and go buy something.  Send him a note while you're at it.  



September is Blood Cancer Awareness Month.  What better way to honor him. 

Because "He's HERE WITH US"!

And.....Fuel Burned Memories Earned............


Can I get a big fat AMEN?! 
 




And THANK YOU from the bottom of our hearts. 

It keeps him busy, and pays them bills.



Happy Humpday!   


Hopefully you are lucky enough to catch a summertime sunset tonight....because that sun is falling quick these days....


Cheers!

This Mama Lisa

Tuesday, August 30, 2016

Proactive Versus Reactive

Happy Tuesday friends!

If there's one thing I've learned on this crazy path of healing and dealing with symptoms, diagnosis', reactions, labs, medicine...etc.  Is to ask. Push. Ask more, and never stop trying to help the one you love.
Kris has had Graft Versus Host Disease since the very first days of "Engraftment" (Engraftment is when the body accepts the donor cells and are finally welcomed into the recipients blood and marrow, growing on their own) When this happens, something called Graft Versus Host can flare up.  Which is a double edged sword.  It's generally a booger.  It can be painful. If you can remember the first few days he began to experience this natural "phenomenon" it was a gnarly rash on his back.  Extremely painful.  One doctor took one look and proclaimed "GVHD", while others would shake their head and say "Radiation"-  Some nurses would even smile and try to remark to us "Tattoo's".  We'd shut that down real quick. 

It was GHVD.  And with GVHD it's actually kind of a good thing.  Donor cells attacking the old Kris cells.  Means one thing to me.  Fight ANY chance of that stupid C word.  Take it.  Rash it.  Bite it.  Tear it.  Kill it. 
The rash ended.  Then the stomach flared up.  
One endoscopy in March showed evidence of it in his gut.  
Between the almost 30 pills a day he took, they really needed to rule this out. 
MEANING- (Does he feel like shit-and shit like a boss all day every day because of allll the meds or....ghvd..)

Fast forward to almost 8 months later.  He still has issues with his tummy.  It just always hurts.  Mostly first thing in the morning.  And sometimes in the middle of the night.  (He has not slept all night without visiting el toilet in el middle of el night since day one)
I've read everything and anything that could help it.  And really, the only thing is steroids.  He hates steroids. 
He still takes one just for his gut GHVD.  It's called Budesonide.  He takes three a day.  A balance for his gut. The other steroid (Prednisone) is down to just 5mg. He's done well tolerating that withdrawal.  

The GVHD in his gut is considered Chronic.  At first the diagnosis was Acute (meaning comes on quick, and leaves) This isn't leaving. It does fluctuate.  But hasn't left.  This is where some mornings are "rougher" than others.  This is where sometimes he pushes hard to just get up and going.  Something that is hard to comprehend when you see him out and about on a boat, or holding a pole.  

He's pushing to live normal.  To be normal.  To be a handsome boyfriend.  A doting fun friend.  A lover and a giver.  

Still, this tummy issue just stays. 

Inside, I think.....come on German donor boy....keep fighting those old Kris cells away.  

This morning we arrived at his Endoscopy bright and early.  His sweet dimpled smile guiding the way. With no food in his stomach and a head ache to boot, he still kept his good spirit. 

They call his name in the waiting room.  Both of us stand.  I still haul my mama warrior bag.  Filled with wipies, med sheets, records, notes, books, soft blankets, teddy bears, stickers..haha - Kidding on the last two. 

They call his name, and ask that I stay in the waiting room, and they'd call me in two hours. 


O.   K.  

We both stare at one another, kind of almost chuckling.  Because if they would of caught me on a bad day, full moon shark week, that shit wouldn't of flew as it did. 
I sat his back pack down off my back. My mama bag down. Smiled at those around me. 
Made friends with a lady named Rose next to me.  

And waited.  

My staring problem growing bigger than ever trying to figure out why this room was filled with so many people.
What was wrong with her. Or him. Or man, that poor little couple navigating here alone.  
He holding her purse.  Her holding her cane.  Them doing this medical thing.  


These days, these purpose-filled moments are happening for a reason.

The season is changing.  This one year of  fluttering around him with my wings spread wide are coming to a better, easier flight.  God is working through this with me.  With him.  For him.  For me. 
I pray for peace in my heart.  To heal my son.  For him.  For his girlfriend.  For his sister.  For his Dad. For his friends.  I want to see him out and about.  

I pray each and every single day for strength. I mostly pray for PEACE.  For peace of whatever the plan should be.  
To be at peace.  

What I will never do is stop my ways of being proactive, versus reactive.  

Keeping on top of things to see if all the stars are aligned the way they should be. 

And right now.  Right now, it seems he's on a good path.  It's not easy some days. 

But man, his smile sure proves different. 

Love.  Strength.  Smiles.  Dimples.  Fuck Cancer hats that have more meaning to so many people nowadays.  One of my favorite words that seems as though might be too aggressive, yet when you've watched this stuff grow and take down families, you understand. 


Proactive versus reactive. 

And prayer. 

We'll wait for the results.  Might have med changes.  Most likely be told the same. 

But for today, we remind ourselves that those stem cells growing and taking over Kris' old cells are just helping fight that ugly C word.


My London friend emailing early this morning with the words none of us want to deal with.  Headed back to the hospital.  Sajjad has swollen lymph-nodes. And a cough. 
Of course us mama's offering love back and forth across the pond via email.  So wild.

I say, it's a virus.  Because come-on, you've come so far Sajjad!!!  

Big love, lots of hugs to you all.

Go spread smiles.  Because you NEVER KNOW WHO NEEDS TO SEE AND FEEL IT!
Any Van Morrison fans out there?
Here's my dedication to you.




This Mama Lisa

Monday, August 29, 2016

Pull That Cork Baby...And Dance Like No One Is Watching....

Friday's doctor visit offered the normal routine.  Only this time we arrived armed with flowers. Roses to be exact.  One bushel for our nurse Anna.  The other for our doctor.  Her first words as she walked in..."Happy Birthday Kristopher"-  Along with hugs, for him.  And me. 

If there's one thing you all probably know about this Mama, is I am persistent when I want answers. Whether it's a quick consult, labs, appts, or the famous "answers"-  

Anna has heard me out more times than I'd like to admit.  But she always holds her cool. ALWAYS.  I hugged her tight.  Giving her the roses with such gratitude.  Sharing with her just how much I appreciate her. My range of questions are anywhere from refills, or labs, for labs. Or just simple advice. The notes in his chart would make some people laugh.  All those messages from mom.

I'm still that mom.  

Why not. 

I have lots to lose here.  And my quest will be to help him get through this endeavor he never wanted to sign up for in the first place.

We'd tuck away in that little room, just as we always do. 
Something I had clenched to the back of my neck the entire ride there, was platelets. Platelets that still seem wonky, and yet he's not on chemo.  And he needs to be on chemo.  And so mania thoughts still haunt me.  I am a momcologist people.  A true intern here.
All other counts looked great.  Platelets and auto neutriphils.  Those two boogers bugged me like a mosquito in your room on a warm summer night.  I can't express those concerns to Kris. He's a nervous bird each and every time he has labs. Doc visits. Blood pressure reads.  All of it. 
Can you blame him?  Poor dude smiles and chats back with me all the way there...as he picks his upper lip.  A nervous habit he inherited from me. 


And so...I kept those silly thoughts to myself.  He did ask me on Thursday just after I sent him his WBC's...
"Is that good Mom"- It's almost as though he just relies on mama's way of explaining. Navigating.  Pushing. Learning.  
He's been through so so much.  
I still get sweaty stinky onion under arms each time I log on to his labs.  

Her news to him was all things look awesome!  Most impressed of THE WAY HE LOOKS.  She almost kisses his forehead.  Something about being a mama.  She has triplets.  All boys.  She gets overly excited each week, month or moment she can watch her patient thrive.  And that is just bitchen. Did I just say bitchen?  Or is it Bitchin?  

We began to scroll down his med sheets. Taking away a couple more, adding back chemo. 
Here's the latest and greatest.   And for you transplant advocates or family followers. Do yourself a favor and make these lists' large and clear.  Trust me. 

You can go down that list with a little pen check mark, each week (changing pen colors every time in rotation).  Making a new one each time there's a change. Then take a picture and keep in your phone.  Just don't let your paper get crinkled like mine did before I sent it to my boy. You're welcome-
His first days home were on the back of a small poster board.  Now look.   Progress. Thriving. Praying.

He has some small changes due to some dizziness.  His blood pressure fluctuating at a crazy rate right now.  It goes extremely high, then drops extremely low.  As in 150/100   to 120/50
Right now, we know God has our back. He's working hard behind the scenes.  With me.  With my heart and most importantly with my birdie.  

We left there headed home at 3.  The 101 at 3pm on a Friday sucks nuts.  Two hours later we'd arrive home.  Both relieved.  Both exhausted.  Both ready to take on the weekend. 

But first stop. 

Concert at the Marina Park in the LBZ. 

Renee would invite us to come down.  She'd marked the spot early in the morning. 

And here. 

This.

 My absolute EVERYTHING. 

Renee and I danced like no one was watching.  We tore up that grassy dance floor with our lovers. 
Our little families watching from a distance. Or should I say, snapping buzzed wino smiles of me.  

hey hey honey badger!

Dance like no-ones watching, right?

 



We celebrated all things LIFE on Friday night.  Renee did such a cute job putting this little gathering together for us.  Sitting around our babes.  Sipping wine. Dancing to 70, 80, and 90's music. 

 Bill worked Saturday. Kali and I had our last breakfast hurrah, before she headed back to SM. 
Car loaded with clean laundry. Few more decorations.
And a hug to finish off the weekend together.

Seasons.
Life.
Love.
Blessings.
Grace.

Hard work.
Blood 
Sweat
Tears.

Literally.



And so Sunday morning rolled around. I woke up to an empty quiet house.
Bill headed over to feed his papa. 
I lit my candle. 
Grabbed my book.
Curled up on the dock.
And read.

 
And the rest of the day looked like this. Floatin' in that little silly boat-


Happy Monday mama's and papa's.

Keep praying!

Don't give up.

Don't ever ever give up.

There's rainbows after that rain.  Somewhere, somehow.   

I promise.

This Mama Lisa



Friday, August 26, 2016

Weeks End

I hope this week treated you well.  If it didn't, just remember there's more ahead.

Take this weekend for what it's worth.  Peace.  Relaxation. Reading. Praying. Loving. Sipping wine.
Writing. Laughing.

May the goodness of the beautiful outdoors bless your shoulders.  Your face. Your soul.

Enjoy this amazing cooler weather.....I know I am.





Happy Friday Peace Lovers...

XO

This Mama Lisa 

Thursday, August 25, 2016

Sisters. Birthday.

The girl that laid in a twin bed next to me for 17 years. 

Even at times we had the chance to have our own room.  We still snuck in together. For safety and comfort.

The girl that loved to read, and loved to eat sunflower seeds.

The girl that knows my deepest stories. And my deepest chapters.

The girl that would pee when our dad offered a spankin' if we deserved one.

The girl that is a delicate flower, like a rose petal. 

The girl that stood next to my son in his darkest days. Even at times when he didn't want to talk. She'd sit there. 

The girl that can make a mean mac-n-cheese. 

The girl that will do anything for our kids.  Details that mean the most. Like wrapping gifts.  Never a gift bag.  

The girl that would lay awake with me as a little girl conspiring a plan on how we'd get our dad to shut off that gosh-darn stereo. Afterall, Tuesday nights weren't the fairest of them all for school days.

The girl that keeps one ear open when I let my opinions roll..or nag her up a tree.  She does listen.
But most always marches to her own beat.  Who needs to listen to baby sister anyway right?

The girl that would take phone calls from the schools when I'd get suspended.  For fighting. 

I call us alley cats, because it's a funny to me.  We are tough little cats.  

We'd have the best camping adventures.  Always headed straight to the juke box with hopes they had Charlie Daniels "Devil went down to Georgia"-  Because we'd sing that song word.for.word. Still do.

Tina, I hope this day is everything that feels special.  From your drive up with your little birdie, to the stops along the way.  To the feeling of walking into our parents home and hugging dad. And watching mom scurry around to make sure you feel at home.  And that chocolate cake.  

I hope you feel love from those that adore you.  Especially your home-girls that keep you going in the hardest darkest hours. 

I hope you have sunshine, shade, good food, and lots of smiles up there with Bella....

And may the little frogs bless your feet on Mom and Dad's front porch. 

Spread that love and sweetness all over that land.  

They're all lucky to have you there. 

Happy Birthday you fierce Virgo.  The detailed planner, and over thinker. 

I love you.  

Your little sister,
 
Lee

Wednesday, August 24, 2016

She Believed She Could

This morning as I was stirring the coconut milk into my coffee I said "Good morning" to little birdie Kali as per normal.  Only this time, I could feel her sense of peace was altered.  Or I guess in mommy terms, something was "off". 

As I probed a little more.  But not too much, because something about Kali and her desire to chit chat too fast, too early is a big fat no-no.  And she most certainly isn't one to share things when not ready.

What I did find through my continued ballet dance around her was-

She's headed back to school.  Monday to be exact.  Before she starts she has a room to set back up. 120 miles away. On her own.
A bedroom she chose to live in with some of her bestest friends out there. 
What she didn't share until I danced a little more around her was...
She kinda felt like I was just "pushing her off"-
What I didn't realize, was, I was. Not intentional by any means, just naturally.
Full plate. Transitioning from a different path.

This time last year a big moving truck came and took all her furniture out to her little apartment. A brother so sick in the hospital and a mom completely disheveled.
Just one year before that we floated around her in full tears, hugs and full escort style to that little dorm.

Fast forward to today. 

A girl that has been a little rock to her mama.  Yet standing back at times while I navigate and swirl the Earth around my boy.  She's had to remind me that it's okay for him to handle things in life on his own.  Secretly wishing that her mom would just filter the love in her direction. 
Isn't this so true in life with children? Motherhood? 
Trying to balance it all between them?

Here I am just trying to mother those little birdies.  
And yet, at times I"m unstable to one, or the other.  Motherhood.
Guilt.

This morning we managed to get her final school errands done. A truck packed to the brim.  The desk she sourced out on her own on Craigslist. The many many pairs of shoes we've shared all summer.  The fancy purses she loves.  The many many clothes I'll surely miss sharing. 

We managed to run in and out of Ross, to grab a few decorating items for her room.  Along with all the normal college necessity.  Kind of chuckling at myself along those aisles at the many silly silly things we bought freshman year.  Oh, man those dorm room marketing ploys I fell in the trap of.

All I could think of as we arrived to pack the truck was....a few years ago I was a crumbling mess to think she was leaving.  My heart and hands did everything possible to ease her back in with all the right tools. 

This time, things were different.  What started as a quiet coffee stir, and pry of emotions, it became obvious to me.  She needs me. 
I've been so preoccupied for months and months and weeks and weeks. 
She hasn't said a word.

She just navigated.  As she should.  This is life, right?
It's never been told to be perfect.  Never will it be either.

My days and weeks are scrambled at times. 

I truly can't believe she drove off today with a truck full for Junior year.  A year that decisions must be made. 
A year where seriousness of the word FUTURE, falls way close to home.  What is next?

Will mama stand close by to stir coffee forever prying from you what is weighing heavy on your heart?

The newness of a new year.  New professors.  New friends. New schedules. New paths. 

Kali, I'm so proud of you.  I am sorry my hands, heart, soul and schedule have not been wrapped around you this season.  

Go move mountains.  Keep pushing like you've promised yourself you would.

Don't party on school nights, because...well. #tummyaches  #thatbod

I hope you pray when you're trying to find the right answer. 

I hope you dance with those beautiful friends you have. 

I hope your Uber drivers are kind.  And safe.

I hope your cooking skills keep creeping up.  Because, girl. 

I hope you know just how much I love you.

You've always been my beep.  My little side kick and awkward crybaby shoulder at the wrong time.  But you get me. Thank you for ordering at the sinful drive-thru we ate at that one night, when I couldn't place the order, because I turn into a squealing ball of mess.  Filet of fishes do rule the world, I will forever hold that close to my heart.  And corn-dogs. If you could always be present as I place those orders girl.


Thank you for dropping bro's meds off, and always encouraging him.  And me.  

Thank you for not laughing in front of him as he puts sunblock on, as you swear he looks like a 5 year old. 
Because we are thankful he's slathering.  So keep praising, K?

Go give San Marcos one heck of a year.  Surround yourself with the good people, walking away from the poisonous ones. 

Give no time to negative feedback.  Only fly to the positive.

I can't wait to see the room you'll put together on your own.  With all those cute little decorations, and rugs. 

You, my girl.  You....will go places. 

It's these moments that mama hasn't been there, will make you an even bigger Kali.

I promise.


Kali-Koo-Koo....get it done!


And....DON'T FORGET TO BE AWESOME!

Tuesday, August 23, 2016

The Difference In A Year

Not just a year, but months.  

Months and months of riding on this rollercoaster with our belts so tight at times we'd all feel as though suffocation was due next.  At least for this mom.  There are days I feel like I have the world in my hands to help carry burdens.  At least the most important burdens.  Then there are days that feel like I can curl in a ball and hide in my room. In bed. 

I reached out to my London friend yesterday "Hi Sumaira"-  Just checking in....and her response is exactly how I feel some days. It does get easier, but just sits on your shoulder every so often. She's overwhelmed. Her boy diagnosed Sept 2015-Transplant weeks after Kris.
And so, life is moving on.  My response simple. Because I know.
I truly know how she feels.  
Unsafe. Unsure. Scared, yet hopeful. 
I feel you Sumaira....I do sister. Hang in there.  Easier said than done.  Just one foot in front of the other.
You can do it mama.


Interesting today sitting down at my computer at work with a scrambled screen.  Something my clever I.T guy says in my ear that brings reality in this chapter to realness. 
Lisa, you might need to save all your pictures onto the F Drive. 
Your storage is too full.
Which translates to me as, purge baby purge. Slide those memories into some other folders, for another day.  Or year.  Or...never.
Not forever trash.  But maybe let's just move it to a safe hidden side.
Who needs to relive the bald pictures.  The sick hard days.
That IV that haunted me.
Gosh just the other day while picking up his meds I cruised by the area we'd wait for spinal chemo, to later try to get him to my car carefully like a weak wounded baby bird. Mama adrenaline in full force.
How the fuck did he get through that you guys?
That port line in his arm that became so simple, yet twisted for all of us.
The many pictures of this journey.
Maybe it's time to retire them.
Just like the many notes of love and encouragement I finally took off my fridge.
Into a box.
Out of sight.
The need to build my own strength.
Faith.
Grace.
Without reminders.

Move em out.
On the F drive.
In the boxes.

We spent the weekend away celebrating Kris' 27th year here on beautiful Mother Earth. 
On this day last year I stood next to his bed as his doctor delivered the news to us, confirming what we feared the most.  
It's all surreal still. 

This past weekend we stepped away as a family. 

Catching up on things in life versus just the constant discussion of medical, appointments, counts, medicines...the nag of a mom. I have to say, watching Jen and Kris cover him with sunblock, sunblock long shirts, and hats was so impressive. At one point, we all kind of chuckled at how slathered and iridescent  he was.  Staying under the umbrella in the pool, or bimini in the boat.  So proud of his awareness.
I'm telling you, he's fully cautious, which makes me incredibly proud.


We laughed SO hard our first night sitting in Mario's restaurant dining on Italian food (which isn't a favorite of Kris' but he agreed because well, 5 against 1).  A monsoon came in like a freight train. Dropping rain drops big enough to splatter outside creating the aroma only a desert rat can appreciate.  We sure did. 
The power flickered out once while we ate in a room filled with other folks.  To a banter of...."ohhhhhhhhhhawwwwww" And the lights would come back on. 
Soon they flickered out and stayed out.  Causing a room to chuckle, cheer and carry on like something you'd only dream of.  Stuff like that is just rad.  Before you know it, they'd bring his cake out to sing.  I watched his face light up, as that candle lit our table with just the perfect lighting
Picture courtesy of his dad. Kris, I'm sure you're not stoked on it, but we love it.  Happy dude, happy parents!
To laugh across the table with us in a dark restaurant as we sang happy birthday.  

The candle never looked more beautiful.  He blew it out.  And we lit it again.
  
All of it meant to be. 

No tears for me. Just wine.
And smiles. And laughs.  Lots and lots of laughs.

I took yesterday off to organize more paperwork, appointments, schedules for Kris and Kali.  Medical (his co-pay charges for an almost million dollar transplant have begun to roll-in....enlightening kids...City Of Hope helped save my son...and dealing with the financial side isn't fun, but kind hearted those gals were yesterday...) I also sorted through Kali's tuition garb and parking passes-shout out to 700bonestoparkacarwtf.  

The one thing that stands out is just how much fuller my heart felt. 

From last year.  This day. 

August 23, 2015 Biopsy of nodes. 
 
October 2015



To now.....August 2016-

God is GOOD you guys.....

I can tell you this warrior path hasn't been easy.  And I'm sure it has more warrior days ahead. 
If you are a reader of mine in bone marrow transplant mode. Know this. You are not alone.  You will get through it. And take one day at a time. This picture above full of hard earned smiles haven't always been smiles. Plenty of blank stares, and lots and lots of tears.  So pray hard and ask for mercy.  There will be good days and there will be bad days.  As a matter of fact there will be days where you'll feel as though it can't get worse.  And it will. And then it will turn back in your favor.  If you are advocating for a family member stay focused.  Stay on top of meds. Doctors, and nurses.  They're human just like you.  Errors are made. Sometimes small, and sometimes not.  You know your patient.  Speak up.  With a kind tongue, do it.  Sharpen that tongue blade as needed.  Keep wiping that room down like a ninja. Listen to your patient, and wipe their tears.  Bring warm towels on the extra bad days, and cool towels when needed.  You will watch a body go through phases of pure miracle-mode.  And that's okay.  You will need to rub backs and feet on extra sad days.  And sometimes just sit quiet.  You will fret over counts now, and even later.  hellolisa...

This year has been nothing I expected. And yet everything I expected. 

I am so lucky my son is here.
One year later.
One year later.....

Stay strong, and keep doing what you love....

Because as Kris says....---- "Those who won't, don't"


Happy Tuesday lovers.

This Mama Lisa

 And big fat PS.  To the sober navigators of the not so,  eh em, Kris....All praise hands to you.
Man, he was a trooper with all of us.  That's for sure...Barrrraaaaacuuuuuddaaa!
And if you're from the Havasu area, or are frequent Havasunians, stop by the new "Culvers" for an iced custard. Straight outta East Coast vibe.  AND tell me if it reminds you of a hamster cage. The smell you guys...the smell. woah.
Jen and I were buckled over, wiping tears and doing the pee-pee dance.
YES.  Yes to hard laughs.
And family that can seriously place an order for you at the counters.
Yes. 


 pss. labs and doc appointment this week.  Praying all good signs!  And good counts! And a doctor that always opens her heart and ears to me.  For that I will be forever grateful.  Because there's something about motherwarriorhood.


-To The World You Are A Mother, But To Your Family You Are The World-

Wednesday, August 17, 2016

Fly Seagull Fly. Let's Celebrate Life. Happy Birthday Merkemer....

Twenty seven years ago I was sitting in the hospital room trying to share my arms with visitors that sat bedside next to me and my brand new precious boy.  A tiny boy that really scared me.  Scared in a sense of not doing the right thing to make him thrive.  And live.  I remember the odd feeling of putting him against my breast to nurse and thinking "oh my gosh, what in the heck am I doing"-  How is he gonna survive on this fidgety mom, slash young teen, slash teeny boobies. Like, was there enough milk, something doesn't feel right... How was I gonna navigate us out of there and to our home where a crib waited.  That same crib that I had organized and reorganized many many times during the days after his due date. 
 
First dive since transplant August 2016-

I remember driving home in the back seat with him in my mother in laws Toyota Supra.  And while staring at him crunched up like a little potato bug in that car seat, all I could worry about was someone hitting our car.  

Arriving at home, I remember setting him on that little hand-me-down love seat in that little grey and white hand-me-down car seat watching his chest rise and fall so quickly.  I didn't want to remove him from it. 
I was petrified of doing this mama thing on our own. 
In fact, I called the nurses shortly later asking why he was breathing so fast.  And why his little chest area had a huge dip in it.  Like something was missing.  

His first wails in distraught would soon come with those blow out diaper changes. Navigating around that circumcision plastic ring, and that belly button black glob. 
All I wanted was a peaceful baby.  On my chest.  Or nuzzled up into my neck.  I can remember trying to rock him at 2,3,4 am in a rocking chair my aunt Ronda and uncle Wade bought me.  It's oak.  It still sits next to my desk at work.  It proves the determination in motherhood and how you "just make things work" versus these new gliders I see adorning new mothers.  I simply put couch cushions under mine to tilt it back.  So we could both get some sleep.
I remember trying to wind up his swing with the smooth touch so the smallest click wouldn't jar him awake.

He'd sleep there some rough nights.  But hey, he survived.  Right?  

Way past when the final swing little arm made its way around.  And he stopped.

I'd protect him like a mother lion for the next 27 years.  I'd shelter him too much at times, learning as he got older, the down sides to that.

He'd never be made to mow a lawn.  Or wash windows.  Or scrub a oven out.  
He'd only learn through a step father how to make sure maintenance on cars are beyond important. 
He'd learn that managing a savings account is vital.  For your future.  
He'd learn to be a tight ass so that a savings account is possible.  
He'd learn to be kind to people and animals.  By the good ol' quote "children learn what they live"...

He'd become very independent throughout his later high school years because his mom worked. 
So independent that he'd tell me later that my sneak attack on them at the bike track to "smell his hands" to make sure he wasn't smoking cigarettes were covered with gloves while they smoked.  

He never wanted to play sports.  As a matter of fact, the first time I signed him up for soccer, AND took the role as team mom (shocker), he'd rub his legs out there on that field. Always proclaiming they hurt.  He'd be more interested in the butterflies grazing the little white flowers.  
Who wants to chase soccer balls when you can chase butterflies. 

We'd stay so close throughout all these years.  Becoming each others bookends at times.  Watching him navigate friendships, relationships, teachers, peers, co-workers. 

Soon, he'd navigate through the hardest days of his life.  

He'd navigate learning the news no person ever wants to hear. 
He'd smile at me through tears, while searching for the confidence in my eyes that I would help fix it.  
However I could. He'd have to share with his mom, as she questioned things us parents never want to talk about...like- "If these things happen, what do you want...."
And the consent from him to be his advocate during care. 
To make serious decisions should they arise. 
She'd have to ask you questions about life and death.
Pushing you along in the dark days.
Scolding you when she felt the need. 
Because, well, motherhood. 

He'd hug his girlfriend tight, and share their intimate thoughts of "the next phase".

He'd remain sick, yet strong.  He'd smile through pain, and sometimes speak his mind making the room full of whomever feel uneasy. 
He'd speak the truth in more ways than we'd want to hear.  

Same for his nurses, and doctors.  They'd get an ear full, and a face full of whatever was on his mind.
Rightfully so, he'd have some very valid "opinions".  We all do.
That's for fucking sure. 

He'd get through the phases of this years journey. 

At twenty seven.  He'd learn a thing or two about life.  About the reality of the things that happen to people.

To good people. 

To all people. 

We'd all pull together tight. 

We'd share thoughts, and schedules. 

He'd learn his girlfriend was a rock of a gem.  One that shone bright, during his darkest days. 

He'd learn his mom would continue to push for answers with doctors, pharmacies, nurses...

We are so blessed to have him here with us. 

I woke in the middle of the night last night and all I could think of was the grace filled mercy handed to me. To him.  To us. 
Chances.
I got to wake up and call my son and wish him a happy birthday.  I got to share breakfast with him across the table.  I can wrap my arms around his growing waist.  I can laugh with him, and share my witty silly humor.  We can exchange text messages with sheer laughter. 

I am lucky. 

To say Happy Birthday to my handsome birdie.  

I hope you can fly, seagull, fly.  For many many more years. 

You truly are the light in my life.  

This song always reminds me of him...


Happy Weekend kids.....

We're looking for sunshine, boating, shade, water, hugs, smiles and strong cocktails. 

Well, speaking for myself.  LOL

Hope your weekend is filled with love.  And life.  Most always thankful for that. 

This Mama Lisa

Monday, August 15, 2016

Good Company

After a weekend filled with hugs, clinking glasses of wine in good cheer, and just celebrating "LIFE"  in general...we thought it'd be a wise idea to take a little Sunday harbour cruise.  That cruise would consist of stopping here first- (Mind you, we were licking our wounds from The Jacob's garage party Saturday that was OFF THE HOOK as always-them folks know how to throw a partaayyy)

And what started out as iced lemon water, and a brew as we cruised.  Both quietly soaking up the sights...and the hum of that little motor.  Striking conversations about dream boats, and a couple dream houses we've always had an eye on as we cruise by we make up little stories on living there.  Funny thing about us, we like the teeny teeny tiny houses.  My only request would be to build a casita on top with views up and over to the ocean.  I'd build a little garden sanctuary up there...with vines growing all around....hey a dreamer can dream right? 

Soon enough we'd catch a glimpse of a couple members of our six pack crew....out in the distance. 

Before you know it....we'd all land here.
This is where all Sunday responsibility of adulthood slash work week mental negotiations go out the window. 
Or in our case, out the back of that little trolling motor.  

You see, we knew at the hour of 3pm, that soon it would be 6,7 and 8pm and we really should of been folding the towels I put in the dryer, and unloading that dishwasher.  Or even meal planning....
No, instead we were crazy and hopped up on that dock.
Bad decision number 2 would soon appear out of no where.  
And what made matters worse, was the view was too good on our eyes.  The whole double edge sword story.
My home girl Carmen kept ordering more wine, and even though we thought we were slick sisters, and decided to "share" about 4 glasses, which just sounds silly typing this. 
Because....who needs to worry about extra glasses of wine.  Especially with work the next day.
I'm telling you, the irrational and rationalizing we did while sitting here was insane. 
Someone -Bill- kept saying...another round....
Carmen would go get that round.
Lisa would drink it.
Bill would drink it. 

Randy would drink it. 
Carmen would drink it. 
Eric would drink it. 
Angie would drink it.

And this slice of firecracker hair girl kept reminding herself that life is good.  The rollercoaster shes been on needs to halt.  Life has been tough.  Too many tears shed.  Too many sleepless nights.
Too many fearful thoughts crossing her mind. 
And so.....

Lisa drank. 

LOL

Arriving at home just after eight.  I'd start folding towels.  Preparing dessert, because hello, we hadn't indulged enough.  I started pounding water. Water. Water. Water. 
Laughing at eachother because I always preach about Sundays, and the importance of a clear mind for Monday.  

But no......

No......

Instead of waking with a clear mind...I'd wake at midnight, 3:30am, and then again at 5am. Pounding headache and the shrill of rollercoaster panic stomach because I can't sort, or even pray correctly. 
I become a twisted mess. 
Dwelling on allllllll the what if's. 

First texts' to my babies.  

Reply from this birdie.

"I'm good mama, just headed out to the island."

My reply back..."Can't stop, won't stop almost 27 this week honey, HAVE FUN!"
 
Side cute note- I received a text from him yesterday morning....
It simply read-  I love you Mom. 


I'll keep that tucked close to my heart.  

Beautiful weekend spent with friends.  Music.  Boats. Wine. Love.  Laughter. 


For that, I am forever grateful. 

I wish you all a beautiful week.....

Count down until I get to kiss my pillow right on it's forehead!  But before I kiss that lover on its forehead, let me kick some ass and get through this day like a BOSS!


Carmen....let's actually share the next "last" glass....

We missed you Russ and Jodee! 

Note to readers:  Don't get your arm twisted by the wine goddesses.... JUST SAY NO.


Love and Peace,

This Red Eyed Mama Lisa